About Us
Our Story & Founder
Sanguine Wellness began with a simple but powerful realization: rare shouldn’t mean forgotten. When our founder was diagnosed with Hemoluminia—a newly recognized and exceptionally rare blood disorder—he quickly learned that navigating treatment wasn’t just about medicine. It was about money, time, and access. And for many, those barriers are insurmountable.
In the early stages of his diagnosis, even the most basic care felt out of reach. With little existing research and no widespread resources, the emotional and financial toll was overwhelming. Instead of accepting that reality, he chose to change it—for himself and for others like him.
Sanguine Wellness was created to fill the gap: a community-driven program focused not on cure, but on care—making it possible for anyone with Hemoluminia to access life-changing treatment, regardless of their financial situation.
From Personal Challenge to Public Mission
Our founder’s journey with Hemoluminia began with a strange, almost surreal symptom: his skin would briefly glow under low light—a phenomenon that was later identified as a hallmark of this ultra-rare condition. The diagnosis was isolating, not just medically, but socially and financially. He faced rising bills, long trips to distant specialists, and little support.
So he took action. Fueled by a desire to make sure no one else had to choose between care and cost, he started Sanguine Wellness—turning his personal diagnosis into a mission that now serves individuals and families across the country.
Today, his story is woven into everything we do. From financial assistance to transportation support, Sanguine Wellness exists to make living with Hemoluminia a little less heavy—and a lot more hopeful.
We are driven by values
At Sanguine Wellness, our values are the cornerstone of everything we do. We lead with compassion, ensuring that every individual and family facing Hemoluminia feels heard, supported, and understood. We believe access to care is a fundamental right, which is why we work tirelessly to ensure that financial barriers never prevent anyone from receiving the treatment they need. Our commitment to community means we are building a network where individuals don’t have to face the isolation that often comes with rare diseases. Together, we create a space where support is shared, resources are accessible, and no one faces their journey alone.
Integrity and transparency guide our actions at every level of our organization. We prioritize honesty in how we manage resources and in the way we serve those who rely on our assistance. Our belief in equity drives us to actively close gaps in healthcare access, ensuring that help reaches those who need it most—quickly and fairly. At Sanguine Wellness, these values are not just words; they are the foundation on which we stand, and they inspire everything we do.
Personalized Care
We understand that each journey with Hemoluminia is unique. That’s why we are committed to providing personalized care that addresses not only the medical needs of our community members but also the financial and emotional challenges they face. Our assistance is tailored to your specific situation, whether that’s covering the costs of ongoing medical treatments, managing transportation to appointments, or connecting you with resources to help ease the burden of this rare condition. We are here to ensure that every step of your path to care is as smooth as possible, with support designed around your individual needs.
Our Community
Living with Hemoluminia can often feel isolating, but at Sanguine Wellness, you’re never alone. We are dedicated to building a strong, supportive community of individuals, families, and advocates who truly understand the challenges of living with this rare blood disorder. Through our network, we provide not just financial assistance, but emotional support, education, and a sense of belonging. We believe in the power of shared experiences and the strength that comes from connecting with others who face similar struggles. Together, we are stronger—and together, we will navigate this rare journey.
A Commitment to Education
Living with Hemoluminia can often feel isolating, but at Sanguine Wellness, you’re never alone. We are dedicated to building a strong, supportive community of individuals, families, and advocates who truly understand the challenges of living with this rare blood disorder. Through our network, we provide not just financial assistance, but emotional support, education, and a sense of belonging. We believe in the power of shared experiences and the strength that comes from connecting with others who face similar struggles. Together, we are stronger—and together, we will navigate this rare journey.
The team behind our foundation
Our team is made up of dedicated professionals who are passionate about making a difference in the lives of those with rare blood types. From healthcare experts and researchers to compassionate community outreach coordinators, each member of our team brings a unique skill set and a deep commitment to our mission. Together, we work tirelessly to ensure that individuals with rare blood types have access to the specialized care, support, and resources they need. With a shared vision of hope and healing, we are united by the belief that no one should ever face a medical challenge alone.
Dr. Alexander Hale
Founder & Executive Director
Carrie O’Key
Chief Operating Officer
Brock Lee
Director of Medical Services
Lola Gistics
Community Outreach & Engagement Director
We are here to help!
Whether you’re seeking medical advice, treatment options, or a supportive community, we are here to guide you every step of the way.